Below I am reposting (unedited, except for some misspellings and one omission that dealt with a bystander that was not relevant to the story) an email I sent to some close family and friends about our recent run-in with the health care system. I am providing a caveat here, which will be duplicated in the email, because I cannot stress enough how lucky we were and how grateful I am to modern medicine, doctors, and health care. However, none of this “in hindsight” backpeddling can change the fact that I was very angry, emotional, sad, and terrified at the time. And that I am still quite angry with the inconsistencies in my son’s care, as well as the lack of education provided by nurses, doctors, care managers, and pharmacists when they sent us home with medical equipment to continue my son’s treatment. Continue reading This Hurts Me More Than It Hurts You (Part I) →